Tuesday, January 02, 2007

The latest from J. Robbins

J. posted another update on the fund and his son, Callum:


Goodbye to a year of extremes.

If this is the last thing I will write here in 2006, I have to say that the degree of goodwill, kindness and support my family has experienced in just the past couple of weeks has had a huge impact on us, and it is helping in very concrete terms to make a way forward for our son Callum. He will have his first adaptive high chair/play chair in January, one that supports his back and trunk and will help him make the most of his limited arm mobility. We have to pay for this piece of gear up front, and then insurance decides what if anything they will reimburse. It has not been easy to get my head around the idea of my family as a charity ... but before Kim and Bill put up their page for Callum, we wouldn't have been able to put the money down for this chair, and now thanks to them, we can. This amazes me.

Even in a year that brought us a challenge we'll spend the rest of our lives trying to comprend, we have a lot to be thankful for.

Spinal Muscular Atrophy Foundation
Families of Spinal Muscular Atrophy
Muscular Dystrophy Association,,,
all do great work aiding families dealing with SMA and its associated burdens, and funding research into a cure. Donations to any of them will help more than just one family.

Wishing a brighter 2007 for us all -

happy new year


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